What We know

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• A once healthy woman can develop PPCM
• PPCM is a genetic trait that not all women carry.
• Men have been found to carry the PPCM genetic trait and can possibly cause a trigger in the mother carrying the child.
• Women who are diagnosed with PPCM at 35%EF or higher has a better chance at recovering
• PPCM is now a leading cause of maternal death but can be treated if detected in time.

PPCM is known as rare, so each participant is crucial. Researchers need to better understand the stories of survivors to successfully develop testing and treatments. By voluntarily sharing information with the PPCM-R, through self-reported survey responses and sharing your PPCM medical record, you can help ensure that the field is focused on aspects of the disease that are most important to survivors.

PPCM-R will start with enrolling USA based PPCM patients in 2023, we anticipate beginning international enrollment in the future. The PPCM-R welcomes those who have been diagnosed with PPCM. Registration is easy and you can choose what information you want to share through surveys and your medical records.

1. To create a database of PPCM survivor medical records driven by patients, with voluntary patient-mediated registration, survey questionnaires, and medical record collection

2. To answer important research questions and ultimately prevent PPCM

3. To be the source reliable information about PPCM, interpreted by experts

4. To be a partner for PPCM advocacy groups in education and research initiatives

Peripartum Cardiomyopathy Awareness Week is May 10-17, 2022 in Texas.❤