PPCM is known as rare, so each participant is crucial. Researchers need to better understand the stories of survivors to successfully develop testing and treatments. By voluntarily sharing information with the PPCM-R, through self-reported survey responses and sharing your PPCM medical record, you can help ensure that the field is focused on aspects of the disease that are most important to survivors.
PPCM-R will start with enrolling USA based PPCM patients in 2023, we anticipate beginning international enrollment in the future. The PPCM-R welcomes those who have been diagnosed with PPCM. Registration is easy and you can choose what information you want to share through surveys and your medical records.
1. To create a database of PPCM survivor medical records driven by patients, with voluntary patient-mediated registration, survey questionnaires, and medical record collection
2. To answer important research questions and ultimately prevent PPCM
3. To be the source reliable information about PPCM, interpreted by experts
4. To be a partner for PPCM advocacy groups in education and research initiatives
Peripartum Cardiomyopathy Awareness Week is May 10-17, 2022 in Texas.❤
Grand Prairie, TX
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