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Home
What is PPCM?
  • PPCM Screening
  • PPCM Treatment
  • Family Planning
  • PPCM Workshops
About Us
  • The Team
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  • PPCM-Research
  • PPCM Chats
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Even years after childbirth, many PPCM survivors continue to face declining heart function, repeated hospitalizations, and overwhelming uncertainty. These moms are still battling for their lives while trying to hold onto hope, motherhood, and dignity.


At LetsTalkPPCM, we’re standing in the gap, for the forgotten warriors. We support the moms still on oxygen, awaiting transplants, managing LVADs, or enduring long hospital stays. Their children often wait at home, unsure when mommy will come back. Their lives are anything but normal, and their strength is nothing short of extraordinary.


💜 This is how YOU can help.


We’ve launched the Save A Mom’s Heart Campaign to raise funds for hospitalized and long-term PPCM survivors. Your donation provides:

✔️ Wellness supplies (unscented lotion, comfort items, spiritual materials)
✔️ Children’s support bags (coloring books, snacks, books about mommy’s heart)
✔️ Warm meals for families visiting the hospital
✔️ Gift cards and emergency funds to help ease the financial burden


Every dollar helps remind a mom that she is not forgotten. Every donation helps keep a heart beating—not just physically, but emotionally and spiritually.


🙏 Join us in lifting the moms who are still fighting, long after the world stopped paying attention.

📩 Want to sponsor a mom directly or send supplies? Email : admins@letstalkppcm.org

Become a Sponsor

We truly thank and love our supporters and understand if you are not able to donate, please consider sharing an awareness post or supporting in other ways to help save lives.

Support Now

Every dollar helps remind a heart mom that she is not forgotten. Every donation helps keep a heart beating, not just physically, but emotionally and spiritually. 

Support Now

Treatment PDF Viewer

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🩺 Medication Management After PPCM Recovery
Provided by LetsTalkPPCM.org | Updated July 2025

  

❓The Clinical Question:

Should PPCM patients who have recovered with normalized ejection fraction discontinue heart failure medications?

  

✅ What Current Research & Expert Guidance Suggests:

1. "Recovery" is Not Always Permanent

  • Recovery of EF      (>50%) does not guarantee long-term cardiac stability.
  • Relapses have      occurred years later, especially during future pregnancies or under      cardiac stress.


2. Continued Medication Often Recommended

  • Guideline-Directed Medical      Therapy (GDMT) —      including beta blockers and ACE inhibitors/ARBs — is typically continued long-term unless      contraindicated.
  • Gradual weaning      may be considered after:
    • ≥6–12 months of       sustained normal EF
    • Absence of heart       failure symptoms
    • Stable       BNP/NT-proBNP levels


3. Weaning Must Be Individualized

  • Decisions should      be based on:
    • Echocardiogram &       lab trends
    • Clinical       presentation
    • Pregnancy plans
    • Cardiologist       oversight

      

📌 LetsTalkPPCM Clinical Recommendations:

   

Clinical Status Recommendation

 EF   <50% or symptomatic


Continue full-dose GDMT

 EF   >50% and stable 6–12+ months


Consider slow med taper with echo & BNP   monitoring

 Future   pregnancy planned


Consider maintaining or restarting meds

 Unsure   / high risk / BIPOC patients


Consult heart failure specialist

  

📚 Key Supportive Literature:

  • AHA Scientific Statement on PPCM (2022)
  • ESC Guidelines for Cardiomyopathies (2023)
  • U.S. PPCM Patient Registry Findings (in progress)

  

🧪 Ongoing LetsTalkPPCM Research Efforts:

  • Launching a PPCM Recovery Registry
  • Partnering with cardiologists to gather real-world  survivor data
  • Hosting free Workshops/Webinars for long-term monitoring

  

📞Contact Us:

💻 http://LetsTalkPPCM.org  
📧 admins@letstalkppcm.org
📍National nonprofit supporting PPCM research, education, and survivor recovery

On Going:

Guidance for Clinicians Requesting Data on Discontinuing or Continuing Heart Failure Medications Post-Recovery.

ZOLL  medical devices save lives by providing heart rhythm protection 24/7 to patient that is at risk for cardiac arrest. It breaks our hearts when we read stories of women with peripartum cardiomyopathy who are not able to have protection for their hearts because they don't have the proper coverage to get approved. 

  • PPCM Screening
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