Even years after childbirth, many PPCM survivors continue to face declining heart function, repeated hospitalizations, and overwhelming uncertainty. These moms are still battling for their lives while trying to hold onto hope, motherhood, and dignity.

At LetsTalkPPCM, we’re standing in the gap, for the forgotten warriors. We support the moms still on oxygen, awaiting transplants, managing LVADs, or enduring long hospital stays. Their children often wait at home, unsure when mommy will come back. Their lives are anything but normal, and their strength is nothing short of extraordinary.

💜 This is how YOU can help.

We’ve launched the Save A Mom’s Heart Campaign to raise funds for hospitalized and long-term PPCM survivors. Your donation provides:

✔️ Wellness supplies (unscented lotion, comfort items, spiritual materials)
✔️ Children’s support bags (coloring books, snacks, books about mommy’s heart)
✔️ Warm meals for families visiting the hospital
✔️ Gift cards and emergency funds to help ease the financial burden

Every dollar helps remind a mom that she is not forgotten. Every donation helps keep a heart beating—not just physically, but emotionally and spiritually.

🙏 Join us in lifting the moms who are still fighting, long after the world stopped paying attention.

📩 Want to sponsor a mom directly or send supplies? Email : admins@letstalkppcm.org

Should PPCM patients who have recovered with normalized ejection fraction discontinue heart failure medications?

1. "Recovery" is Not Always Permanent

• Recovery of EF      (>50%) does not guarantee long-term cardiac stability.
• Relapses have      occurred years later, especially during future pregnancies or under      cardiac stress.

2. Continued Medication Often Recommended

• Guideline-Directed Medical      Therapy (GDMT) —      including beta blockers and ACE inhibitors/ARBs — is typically continued long-term unless      contraindicated.
• Gradual weaning      may be considered after:
  • ≥6–12 months of       sustained normal EF
  • Absence of heart       failure symptoms
  • Stable       BNP/NT-proBNP levels

3. Weaning Must Be Individualized

• Decisions should      be based on:
  • Echocardiogram &       lab trends
  • Clinical       presentation
  • Pregnancy plans
  • Cardiologist       oversight

    

Clinical Status Recommendation

 EF   <50% or symptomatic

Continue full-dose GDMT

 EF   >50% and stable 6–12+ months

Consider slow med taper with echo & BNP   monitoring

 Future   pregnancy planned

Consider maintaining or restarting meds

 Unsure   / high risk / BIPOC patients

Consult heart failure specialist

• AHA Scientific Statement on PPCM (2022)
• ESC Guidelines for Cardiomyopathies (2023)
• U.S. PPCM Patient Registry Findings (in progress)

• Launching a PPCM Recovery Registry
• Partnering with cardiologists to gather real-world  survivor data
• Hosting free Workshops/Webinars for long-term monitoring

💻 http://LetsTalkPPCM.org  
📧 admins@letstalkppcm.org
📍National nonprofit supporting PPCM research, education, and survivor recovery