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Even years after childbirth, many PPCM survivors continue to face declining heart function, repeated hospitalizations, and overwhelming uncertainty.
These moms are still battling for their lives while trying to hold onto hope, motherhood, and dignity.
LetsTalkPPCM is standing in the gap, for the forgotten warriors. We support the moms still on oxygen, awaiting transplants, managing LVADs, or enduring long hospital stays.
Their children often wait at home, unsure when mommy will come back. Their lives are anything but normal, and their strength is nothing short of extraordinary.
💜 This is how YOU can help.
We’ve launched the Save A Mom’s Heart Campaign to raise funds for hospitalized and long-term PPCM survivors.
Your donation provides:
✔️ Wellness supplies (unscented lotion, comfort items, spiritual materials)
✔️ Children’s support bags (coloring books, snacks, books about mommy’s heart)
✔️ Warm meals for families visiting the hospital
✔️ Gift cards and emergency funds to help ease the financial burden
Every dollar helps remind a mom that she is not forgotten. Every donation helps keep a heart beating, not just physically, but emotionally and spiritually.
🙏 Join us in lifting the moms who are still fighting, long after the world stopped paying attention.
📩 Want to sponsor a mom directly or send supplies? Email : info@letstalkppcm.org
Save A Heart
We truly thank and love our supporters and understand if you are not able to donate, please consider sharing an awareness post or supporting in other ways to help save lives.
Medication Management After PPCM Recovery
Provided by LetsTalkPPCM | Updated July 2025
The Clinical Question:
Should PPCM patients who have recovered with normalized ejection fraction discontinue heart failure medications?
What Current Research & Expert Guidance Suggests:
1. "Recovery" is Not Always Permanent
- Recovery of EF (>50%) does not guarantee long-term cardiac stability.
- Relapses have occurred years later, especially during future pregnancies or under cardiac stress.
2. Continued Medication Often Recommended
- Guideline-Directed Medical Therapy (GDMT) including beta blockers and ACE inhibitors/ARBs, is typically continued long-term unless contraindicated.
- Gradual weaning may be considered after:
- ≥6–12 months of sustained normal EF
- Absence of heart failure symptoms
- Stable BNP/NT-proBNP levels
3. Weaning Must Be Individualized
- Decisions should be based on:
- Echocardiogram & lab trends
- Clinical presentation
- Pregnancy plans
- Cardiologist oversight
📌 LetsTalkPPCM Clinical Recommendations:
Clinical Status Recommendation
EF <50% or symptomatic
Continue full-dose GDMT
EF >50% and stable 6–12+ months
Consider slow med taper with echo & BNP monitoring
Future pregnancy planned
Consider maintaining or restarting meds
Unsure / high risk / BIPOC patients
Consult heart failure specialist
Key Supportive Literature:
- AHA Scientific Statement on PPCM (2022)
- ESC Guidelines for Cardiomyopathies (2023)
- U.S. PPCM Patient Registry Findings (in progress)
🧪 Ongoing LetsTalkPPCM Research Efforts:
- Launching a PPCM Recovery Registry
- Partnering with cardiologists to gather real-world survivor data
- Hosting free Workshops/Webinars for long-term monitoring
📞Contact Us:
💻 http://LetsTalkPPCM.org
📧 info@letstalkppcm.org
National nonprofit supporting PPCM research, education, and survivor recovery
On Going:
Guidance for Clinicians Requesting Data on Discontinuing or Continuing Heart Failure Medications Post-Recovery.
Let's Talk PPCM
"New mothers are counting on us, often in silence and when it matters most. With the right support, their stories can have stronger, healthier endings. If you feel led to give, your kindness helps protect their hearts and futures."