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PPCM-R Data Survey
Registry For PPCM Heart Moms
PPCM is known as rare, so each participant is crucial. Researchers need to better understand the stories of survivors to successfully develop testing and treatments.
Your story matters. Every experience, every challenge, and every triumph you've faced with PPCM is a powerful piece of the puzzle that can help save lives.
We invite you to take a few moments to participate in our research survey. By sharing your PPCM journey, you’re not just filling out answers—you’re giving hope, helping us advocate for better care, and shaping a future where no mother’s heart health is overlooked.
You are the voice behind the change we all want to see.
Let’s make sure the world hears it.
PPCM-R has four main goals:
1. To create a database of PPCM survivor medical records driven by patients, with voluntary patient-mediated registration, survey questionnaires, and medical record collection
2. To answer important research questions and ultimately prevent PPCM
3. To be the source reliable information about PPCM, interpreted by experts
4. To be a partner for PPCM advocacy groups in education and research initiatives
Peripartum Cardiomyopathy Awareness Week is (May 10-17) in Texas. ❤
Research Findings
- A once healthy woman can develop PPCM
- PPCM is a genetic trait that not all women carry.
- Men have been found to carry the PPCM genetic trait and can possibly cause a trigger in the mother carrying the child.
- Women who are diagnosed with PPCM at 35%EF or higher has a better chance at recovering
- PPCM is now a leading cause of maternal death but can be treated if detected in time.
Save moms heart❤️
Support Life-Saving Research: Help Us Raise $10,000 for PPCM Awareness and Early Detection
Dear Friends and Supporters,
At LetsTalkPPCM, our mission is to save lives by increasing awareness and promoting early detection of Peripartum Cardiomyopathy (PPCM), a life-threatening heart condition that affects new mothers. With your generous support, we've been able to make strides in education, advocacy, and support for those affected. Now, we need your help to take the next crucial step: funding research that could lead to better outcomes for mothers at risk.
Why Your Support Matters:
💔 PPCM is Under-Researched: Despite its severity, PPCM remains largely under-researched, with many cases going undiagnosed until it's too late. Funding dedicated research can help change this by identifying key risk factors, improving diagnostic tools, and ultimately, saving lives.
👶 Early Detection Saves Lives: The sooner PPCM is detected, the better the chances for a full recovery. Your donation will help us support research efforts aimed at developing early detection methods, ensuring that no mother faces this condition without the knowledge and resources to fight it.
Our Goal: $10,000
We aim to raise $10,000 to fund critical PPCM research. Every dollar you contribute will go directly towards studies that have the potential to make a real difference in the lives of mothers and families.
Here's How You Can Help:
- Donate: Every contribution, no matter the size, brings us closer to our goal. Consider making a donation today [insert donation link].
- Share: Spread the word by sharing this post with your network. The more people who know about PPCM and our mission, the closer we get to a future where PPCM is no longer a silent threat.
- Engage: Follow us on social media for updates on how your donations are making an impact. Your continued support and engagement are key to our success.
Together, We Can Make a Difference
Your support has already helped us reach so many mothers, but there's so much more we can do. By contributing to this research fund, you’re not just donating—you’re becoming part of a movement to ensure that no mother is left fighting PPCM alone.
Thank you for standing with us. Thank you for caring. And thank you for helping us get one step closer to a world where PPCM is a thing of the past.
Let's Talk PPCM
"New mothers are counting on us—your support can make all the difference. Donate today to help protect their hearts and their futures. All contributions are tax-deductible."