Patient Advocates

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1. PPCM Survivor Mentor: These patient advocates are experienced PPCM survivors who have successfully navigated life after PPCM. They provide guidance, support, and hope to newly diagnosed PPCM moms by sharing their personal stories, coping strategies, and practical tips for managing the condition. They uplift and encourage newly diagnosed moms, helping them build resilience and a positive mindset.

2. PPCM Educational Ambassador: These advocates have in-depth knowledge about PPCM and its impact on women's lives. They educate newly diagnosed moms about the condition, its symptoms, treatment options, and long-term management strategies. They empower moms with accurate information, helping them make informed decisions about their healthcare and ensuring they have a comprehensive understanding of life after PPCM.

3. PPCM Support Group Facilitator: These advocates lead support groups specifically designed for PPCM moms. They create a safe and nurturing environment where newly diagnosed moms can share their concerns, fears, and challenges. They facilitate group discussions, encourage open dialogue, and provide emotional support. These facilitators ensure that each mom feels heard, validated, and connected with others who have similar experiences.

4. PPCM Wellness Coach: These advocates focus on promoting overall well-being and self-care among newly diagnosed PPCM moms. They provide guidance on adopting a healthy lifestyle, managing stress, incorporating exercise and nutrition, and developing self-care routines. They motivate and inspire moms to prioritize their physical and emotional health, empowering them to thrive in their daily lives despite the challenges of PPCM.

5. PPCM Advocacy Leader: These advocates actively raise awareness about PPCM and advocate for improved care and support for women affected by the condition. They work on initiatives such as organizing awareness campaigns, lobbying for policy changes, and collaborating with healthcare professionals and organizations. These leaders empower newly diagnosed moms by giving them a voice and fighting for their rights and well-being.

6. PPCM Peer Counselor: These advocates provide one-on-one support to newly diagnosed PPCM moms. They offer a compassionate ear, understanding, and empathy. Through active listening and personalized guidance, they help moms navigate the emotional rollercoaster of PPCM, provide reassurance, and offer coping strategies. These peer counselors are valuable allies in the journey to recovery and help moms feel less isolated and more supported.

7. PPCM Community Outreach Coordinator: These advocates focus on reaching out to newly diagnosed PPCM moms within the community, both online and offline. They establish connections with healthcare providers, community organizations, and support networks to ensure that no mom feels alone in her PPCM journey. They organize meet-ups, webinars, and workshops, creating opportunities for moms to connect, share experiences, and access valuable resources.

8. PPCM Resilience Trainer: These advocates specialize in building resilience and empowering newly diagnosed moms to overcome challenges associated with PPCM. They conduct workshops and training sessions, teaching moms effective coping strategies, stress management techniques, and emotional well-being practices. These trainers equip moms with tools to bounce back from setbacks, adapt to life changes, and embrace a positive mindset.

9. PPCM Research Advocate: These advocates focus on promoting and participating in PPCM research initiatives. They stay updated with the latest advancements, clinical trials, and treatment options related to PPCM. They help newly diagnosed moms understand the importance of research, encourage them to consider participation in studies, and provide them with information about ongoing research projects that may offer additional insights and potential benefits.

10. PPCM Empowerment Speaker: These advocates inspire and motivate newly diagnosed PPCM moms through motivational speeches and presentations. They share their personal journeys of triumph over PPCM, highlighting the strength, resilience, and hope that can be found in the face of adversity. Their uplifting messages and empowering stories help moms realize their own potential and embrace life after PPCM with confidence and determination.

Our PPCM Patient Advocates & Instructors can be booked virtually or for local in-person support/workshops. 

• Make sure mom knows all her treatment options
• Sharing support group information
• Information on sharing PPCM stories to increase awareness
• Pair a virtual/ in-person PPCM advocate through https://letstalkppcm.org
• List of safe breastfeeding medicine like Metoprolol or Losartan
• Referral to infantrisk.com for approved safe medication
• Suggest a BNP blood test if mom has known risk factors or showing signs
• Paring PPCM mom with a local cardiologist familiar with the condition
• Alert doctors of the B.H. PPCM Screening Exam