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BNP Data Study

BNP Data Collection for High-Risk Moms: Compensation and Contribution to Early PPCM Detection Introduction

Let'sTalkPPCM, a nonprofit organization dedicated to raising awareness and promoting the early detection of Peripartum Cardiomyopathy (PPCM), is launching a B-type Natriuretic Peptide (BNP) data collection initiative. This program aims to gather valuable information from high-risk expectant mothers to facilitate early detection of PPCM, ultimately improving maternal health outcomes. As part of this initiative, Let'sTalkPPCM is offering COMPENSATION to participants for their time and blood donation. This guide will outline what you can expect from this data collection process.


The objective of the BNP Data Collection: The BNP data collection initiative by Let'sTalkPPCM aims to identify potential markers of PPCM risk in high-risk pregnant women. By analyzing BNP levels in blood samples, researchers can gain insights into the early signs of PPCM, allowing for earlier diagnosis and intervention.


Participant Eligibility: To participate in the BNP data collection, you must meet the following eligibility criteria:


  1. Pregnant or within six weeks postpartum.
  2. High-risk for PPCM, including women with a previous history of PPCM, family history of PPCM, multiple gestations (e.g., twins, triplets), advanced maternal age, hypertension, diabetes, or other risk factors identified by medical professionals.
  3. Willingness to provide a blood sample for BNP analysis.


Data Collection Process: If you choose to participate in the BNP data collection, here's an overview of what you can expect:


  1. Informed Consent: You will be provided with a detailed explanation of the study's purpose, procedures, potential risks, and benefits. Your informed consent will be obtained before proceeding.
  2. Questionnaire: You will be asked to complete a questionnaire regarding your medical history, pregnancy details, and any symptoms or concerns related to PPCM. This information will help researchers gain a comprehensive understanding of the study participants.
  3. Blood Sample Collection: A healthcare professional will collect a blood sample from you. The procedure will be performed using sterile techniques and will typically involve drawing blood from a vein in your arm. The sample will then be sent for BNP analysis.
  4. Compensation: Upon completion of the data collection process, you will receive compensation for your time and blood donation. Let'sTalkPPCM acknowledges your valuable contribution to advancing PPCM research and raising awareness.


Confidentiality and Data Security: Let'sTalkPPCM understands the importance of safeguarding participant privacy and confidentiality. Your personal information and medical data will be kept strictly confidential and will only be used for research purposes with appropriate anonymization.


Benefits and Future Impact: By participating in this BNP data collection, you contribute to the early detection of PPCM, potentially saving lives and improving maternal health outcomes. The research findings from this initiative can lead to better diagnostic tools and treatment strategies for PPCM, benefiting not only high-risk expectant mothers but also the broader medical community.


Conclusion: Let'sTalkPPCM's BNP data collection initiative provides an opportunity for high-risk expectant mothers to actively participate in PPCM research and contribute to early detection efforts. By joining this initiative, you play a vital role in improving maternal health outcomes and raising awareness about PPCM.

Learn more

PPCM-R Data Survey

Registry For PPCM Heart Moms

PPCM is known as rare, so each participant is crucial. Researchers need to better understand the stories of survivors to successfully develop testing and treatments. By voluntarily sharing information with the PPCM-R, through self-reported survey responses and sharing your PPCM medical record, you can help ensure that the field is focused on aspects of the disease that are most important to survivors.


PPCM-R will start with enrolling USA based PPCM patients in 2023, we anticipate beginning international enrollment in the future. The PPCM-R welcomes those who have been diagnosed with PPCM. Registration is easy and you can choose what information you want to share through surveys and your medical records.


PPCM-R has four main goals:

1. To create a database of PPCM survivor medical records driven by patients, with voluntary patient-mediated registration, survey questionnaires, and medical record collection

2. To answer important research questions and ultimately prevent PPCM

3. To be the source reliable information about PPCM, interpreted by experts

4. To be a partner for PPCM advocacy groups in education and research initiatives


Peripartum Cardiomyopathy Awareness Week is May 10-17, 2022 in Texas.❤

Enroll Now

Research Findings

  • A once healthy woman can develop PPCM
  • PPCM is a genetic trait that not all women carry.
  • Men have been found to carry the PPCM genetic trait and can possibly cause a trigger in the mother carrying the child.
  • Women who are diagnosed with PPCM at 35%EF or higher has a better chance at recovering
  • PPCM is now a leading cause of maternal death but can be treated if detected in time.

2023 Update

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