🤝 Our Collaborations

Let’s Talk PPCM believes collaboration accelerates progress. We partner with organizations and initiatives that share our mission to save lives, expand awareness, support families, and advance research into PPCM and related heart conditions.

We are proud to work with the DCM Foundation, a leading nonprofit dedicated to supporting individuals and families affected by dilated cardiomyopathy (DCM). Through their programs, patients and families can access free genetic testing options and learn about genetic causes of cardiomyopathy — a resource that can be life-changing for those navigating inherited heart disease. Free Genetic Testing – DCM Foundation

In addition to testing, the DCM Foundation supports the Genetic Cardiomyopathy Registry, a global initiative for individuals with genetic cardiomyopathy to share data that fuels research and improves understanding of these conditions. 

👉 Useful links:
• Genetic testing info & options: 

dcmfoundation.org/genetic‑testing/get‑genetically‑tested

• Learn about genetic cardiomyopathy and resources: 

https://geneticcardiomyopathy.org/registry/genetic-cardiomyopathy-registry 

We partner with PPCM-R, an online research registry focused on peripartum cardiomyopathy (PPCM) — a rare but serious form of heart failure that affects women during pregnancy and the postpartum period. The registry is a powerful resource for survivors to share their experiences and medical information in order to help researchers better understand, prevent, and treat PPCM. 

👉 Visit the registry and learn more:
🔗 PPCM-R Registry: ppcmr.org

We are honored to collaborate with Baylor Scott & White, who provide free PPCM education and patient-centered materials to help individuals and families better understand this condition.

Their commitment to education helps bridge the gap between clinical knowledge and real-life patient experience, empowering patients to advocate for themselves with confidence and clarity.

Through Baylor Scott & White Health Plan, families have access to free PPCM-focused workshops and educational materials designed to support learning, awareness, and long-term heart health.

These workshops offer safe spaces for education, questions, and connection — reinforcing the importance of continued support beyond diagnosis.

Our partnerships are rooted in a simple belief:
when we work together with intention, lives are changed.

Partnership with Let’s Talk PPCM may include:

• Providing free or accessible education and materials
• Supporting patient and provider awareness initiatives
• Collaborating on workshops, outreach, or advocacy efforts
• Amplifying survivor voices and lived experiences
• Advancing research and early recognition of PPCM

Each partnership looks different, but all are built on respect, transparency, compassion, and a shared mission to protect maternal heart health.

We welcome partnerships with organizations, clinics, researchers, nonprofits, advocacy groups, and community programs whose work aligns with our mission.

If your organization believes in:

• improving maternal outcomes
• increasing awareness of PPCM
• expanding education and access to care
• centering patients and families

Listed source by Everyday Health Magazine:  What Is Peripartum Cardiomyopathy (PPCM)? 

📧 Contact us at: info@letstalkppcm.org